Patient Involvement
in CanGene-CanVar

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The Patient Reference Panel (PRP) is made up of 12 patients, carers and members of the public who are affected by cancer and have an interest in genetics. 

The panel was set up in 2020 to ensure that the patient/public views regarding the release and use of nationally collected datasets are incorporated into the project recommendations; to work closely with the team to develop and test patient decision tools; to act as a place for discussion and decision-making about the public/patient perception of risk; and to act as ambassadors for the programme itself.

The members of the panel are a tight, respected and engaged group who come from a wide range of backgrounds and acts in an advisory capacity to the research programme. 

Lesley Turner, Chair of the PRP

25th March 2022

The Patient Reference Panel 

Involvement Activities

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Get Involved

Here you can find current activities for you to get involved with.